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Riviste
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
Accesso libero
The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
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21 Articoli
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Community Focus
Accesso libero | 09 mar 2022
New challenges for an expanding generation of older persons with haemophilia
Jamie O’Hara
Jamie O’Hara
,
Declan Noone
Declan Noone
,
Persefoni Kritikou
Persefoni Kritikou
,
Karl-Johan Myren
Karl-Johan Myren
,
Steve Chaplin
Steve Chaplin
e
Daniel P Hart
Daniel P Hart
Systems Change
Accesso libero | 09 mar 2022
Key challenges for patient registries – A report from the 1
st
workshop of the EHC Think Tank Workstream on Registries
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
,
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
e
Ehc Think Tank
Ehc Think Tank
Accesso libero | 29 mar 2022
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
e
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
Accesso libero | 29 mar 2022
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency
Amanda Bok
Amanda Bok
,
Declan Noone
Declan Noone
e
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
Case Study
Accesso libero | 29 mar 2022
Osseous bilateral pseudotumour of the thumb in severe haemophilia A – A case report
Prakas K Mandal
Prakas K Mandal
,
Rishu Vidhrati
Rishu Vidhrati
e
Debasis Gantait
Debasis Gantait
Accesso libero | 20 mag 2022
Treatment of a patient with severe haemophilia A presenting with left extra pleural haematoma and diagnosed with inhibitors – case report
Arijit Das
Arijit Das
,
Anupam Dutta
Anupam Dutta
,
Ramanan BBV
Ramanan BBV
e
Sanchu TK Sreeraj
Sanchu TK Sreeraj
Accesso libero | 04 lug 2022
“I didn’t know women could have haemophilia”: A qualitative case study
Simon Fletcher
Simon Fletcher
Clinical Viewpoint
Accesso libero | 08 apr 2022
Development of decision-making considerations to support equitable patient selection in paediatric haemophilia trials
Anne Fu
Anne Fu
,
Karen Strike
Karen Strike
,
Korinne Hamilton
Korinne Hamilton
,
Linda Waterhouse
Linda Waterhouse
,
Kay Decker
Kay Decker
,
Theresa Almonte
Theresa Almonte
e
Anthony K C Chan
Anthony K C Chan
Evidence Review
Accesso libero | 20 mag 2022
Discrete choice experiments: An overview of experience to date in haemophilia
John Spoors
John Spoors
,
Alec Miners
Alec Miners
e
John Cairns
John Cairns
Clinical Practice
Accesso libero | 20 mag 2022
Point of care ultrasonography in patients with haemophilia and acute haemarthrosis: a physiotherapist and sonographer inter-professional agreement pilot study
Karen Strike
Karen Strike
,
Anthony KC Chan
Anthony KC Chan
,
Monica R Maly
Monica R Maly
,
Nina Stein
Nina Stein
,
Lynne Farrell
Lynne Farrell
e
Patricia Solomon
Patricia Solomon
Accesso libero | 03 gen 2023
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
Declan Noone
Declan Noone
,
Jan Astermark
Jan Astermark
,
Brian O'Mahony
Brian O'Mahony
,
Flora Peyvandi
Flora Peyvandi
,
Kate Khair
Kate Khair
,
Luke Pembroke
Luke Pembroke
e
Kathryn Jenner
Kathryn Jenner
Short Report
Accesso libero | 20 mag 2022
Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report
Philip Kasirye
Philip Kasirye
,
Agnes Kisakye
Agnes Kisakye
,
Annette Nakalyango
Annette Nakalyango
e
Atwiine Barnabas
Atwiine Barnabas
Clinical Research
Accesso libero | 28 set 2022
Comparison of perioperative practices for placement of central venous access devices (CVAD) in children with haemophilia
Celia Kwan
Celia Kwan
,
Anthony KC Chan
Anthony KC Chan
,
Pei Lin Koh
Pei Lin Koh
,
Nur Insyirah Abdul Kadir
Nur Insyirah Abdul Kadir
,
Kay Decker
Kay Decker
,
Chiew Ying Lim
Chiew Ying Lim
e
Joyce Ching Mei Lam
Joyce Ching Mei Lam
Accesso libero | 08 ott 2022
Comparative evaluation and preference of MixPro
®
versus Mix2Vial
®
reconstitution devices among people with haemophilia and caregivers
Jon Ulrich Hansen
Jon Ulrich Hansen
,
Cléa Percier
Cléa Percier
,
Henrik Damgaard-Rasmussen
Henrik Damgaard-Rasmussen
e
Katherine Palmer
Katherine Palmer
Accesso libero | 03 gen 2023
Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study
Tyler W. Buckner
Tyler W. Buckner
,
Nabil Daoud
Nabil Daoud
,
Moses Miles
Moses Miles
,
Carrie O'Neill
Carrie O'Neill
,
Crystal Watson
Crystal Watson
e
Michael Recht
Michael Recht
Women & Bleeding Disorders
Accesso libero | 26 nov 2022
The Second European Conference on Women and Bleeding Disorders, Basel, Switzerland, 10–12 May 2022
Naja Skouw-Rasmussen
Naja Skouw-Rasmussen
,
Evelyn Grimberg
Evelyn Grimberg
e
Declan Noone
Declan Noone
Accesso libero | 26 nov 2022
Monitoring to improve quality of life in women with bleeding disorders
Declan Noone
Declan Noone
e
Roseline d’Oiron
Roseline d’Oiron
Accesso libero | 26 nov 2022
Ageing and women with bleeding disorders
Sheila Radhakrishnan
Sheila Radhakrishnan
e
Roseline d’Oiron
Roseline d’Oiron
Accesso libero | 26 nov 2022
Focus on musculoskeletal health in women with bleeding disorders
Alison Dougall
Alison Dougall
e
Laurent Frenzel
Laurent Frenzel
Accesso libero | 26 nov 2022
The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium
Debra Pollard
Debra Pollard
e
Kate Khair
Kate Khair
Accesso libero | 26 nov 2022
Advocacy worldwide for women with bleeding disorders
Evelyn Grimberg
Evelyn Grimberg
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Volume 11 (2024)
Numero 1 (Gennaio 2024)
Volume 10 (2023)
Numero 1 (Gennaio 2023)
Volume 9 (2022)
Numero 1 (Gennaio 2022)
Volume 8 (2021)
Numero 1 (Gennaio 2021)
Volume 7 (2020)
Numero 1 (Gennaio 2020)
Volume 6 (2019)
Numero 2 (Gennaio 2019)
Numero 1 (Gennaio 2019)
Volume 5 (2018)
Numero 1 (Aprile 2018)
Volume 4 (2017)
Numero 1 (Gennaio 2017)
Volume 3 (2016)
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Volume 2 (2015)
Numero 2 (Luglio 2015)
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Volume 1 (2014)
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