23 Articles
System Change
Open Access | Feb 23, 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
, and Open Access | Jul 17, 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
and Open Access | Aug 09, 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
and Open Access | Dec 29, 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
, , , and Clinical Research
Open Access | Feb 23, 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
, , , , and Open Access | Jul 17, 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
, , , , , , and Open Access | Oct 31, 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
, , , , , and Open Access | Dec 17, 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
, , , , , , and
, , , , , and Community Focus
Open Access | Apr 21, 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
, and Open Access | May 18, 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
and Nurse Focus
Open Access | May 05, 2023
Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
Open Access | May 05, 2023
Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care
Open Access | May 05, 2023
Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia
Open Access | May 05, 2023
Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care
Open Access | Dec 17, 2023
Living, Caring, Learning – Addressing challenges in the transition to adult care
Clinical Practice
Open Access | Dec 20, 2023
Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials
, , , , , , , , and Open Access | Dec 29, 2023
A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts
, , , , , and Case Study
Open Access | Aug 09, 2023
Management of a patient with factor X deficiency with FEIBA: a case report
and Open Access | Oct 19, 2023
A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report
, , , and Open Access | Oct 19, 2023
The first reported case of factor X deficiency in a Filipino child – case study
, , and Commentary
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